Free health screening and sickle cell disease awareness campaign

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CONCEPT NOTE 
Background

Sickle Cell Disease (SCD) is a genetic disorder discovered over a century ago by James Herrick. Advancement in medical knowledge and practice ensure that persons living with SCD enjoy a better quality of life and higher life expectancy now than when it was first discovered. 

Despite these, many patients, especially in Sub-Saharan Africa, continue to suffer preventable complications and early death due to lack of access to required medical care. The United Nations General Assembly (UNGA) declared SCD a global public health emergency in 2008 in recognition of the worldwide toll of this condition and announced June 19 World Sickle Cell Day, with a focus on raising awareness about the condition. Several interventions have since been initiated by member countries to address this with September recognized as Sickle Cell Awareness month in several countries. SCD presents many risks and complications to pregnant women and children thus Sustainable Development Goal (SDG) 3 which, targets the reduction of maternal mortality and prevention of under 5 mortality as well as reducing mortality from non-communicable diseases are a critical aim of SCD advocacy.

Facts about Sickle Cell

The Global Shapers Accra Hub committed to shaping Accra one issue at a time while giving young people a seat at the table of influence. Identified as one of the health issues to focus on for the foregoing year; challenges regarding the management of Sickle Cell Disease in our society.

To this end, the hub is working with our partners, Sickle Life, La Traditional community, and others to drive advocacy on Sickle Cell Awareness for September 2019. 

This year’s activities will be carried out both online and offline. Targeted at both urban and rural dwellers an improvement of last year’s where activities were a bit formal. The essence is for grassroots participation, especially for people who view SCD as a myth and hence require education. 

T here will be a month-long online campaign culminating into the health talk, general screening, and counseling in September 2019. We are all affected by the condition, and indeed, all have a Sickle Cell Story.  

Objectives:
  • Intensive traditional media engagement to publicize and discuss Sickle Cell Disease using multiple streams including radio and TV
  • Work towards attaining healthy lives and promoting well-being for all at all ages by 2030.
  • Encourage stakeholder engagement in actively demystifying SCD.
  • Create awareness and court the public to attend the event.

Event Date:

Saturday 28th September 2019

Location:

Golden Gate Chapel (Oko Asala)- La
 
Expected Number of Participants: 

120 persons

Activities lined up:

    • Online engagement: This is expected to run through the month and aimed at creating awareness on the sickle cell using multiple streams as well as presenting in both local dialects and English. The Sickle Cell Facts / Patient experiences will take the form of: 
    • -Posters
    • -Videos
    • -Short interviews

    • Health talk/ Sickle Cell Screening and Counselling: The month-long sensitization effort will be climaxed with a day-long event in a rural community comprising of Health talks about Sickle Cell Disease. Interaction with persons living with Sickle Cell Disease to share #OurSickleCellStories and free Sickle Cell and Blood group testing as well as genetic counseling.


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Cost Description Cost ($)
Medical Cost 899.0
Payment Processing 27.0
Operational Cost 74.0
Total 1000.0

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